Erin is one amazing 9 year old, who has battled kidney disease with bravery for 3 years. She has endured so much, but never stops looking for ways to show kindness to others. And her kindness goes far beyond Silly Kidneys. Erin loves to draw and paint, and is known for her sweet pictures she makes as gifts for friends and family. She is also quite the hostess, always making drinks and snacks for company, helping with dinner, or making coffee for mom! She loves soccer, and is learning to crochet. She is a girly girl, and has so much fun with make-up, jewelry and fancy clothes. And she loves babies! Her best friend is a 2 year old named George.
In 2015, at age 6, Erin was diagnosed with a rare kidney disease. She did not respond to treatments. Outside of God's intervention, her kidneys will eventually fail and she will require dialysis or a transplant to keep her alive. God has a perfect plan for her life and He knows what is best!
How it started...
In March of 2015, Erin started waking up with very swollen eyes. Her doctor thought it may be allergies so we treated it like it was. Over the next couple of weeks, they progressively got worse. Some mornings she would be so swollen that she could not even open one, or both, of her eyes. Realizing it was more than just allergies and further testing was done, to see what was going on. The lab work came back and it was clear there was a problem with her kidneys.
She saw a pediatric nephrologist who delivered the difficult news that Erin's kidneys were not working as they should. She was diagnosed with nephrotic syndrome.
"Focal segmental glomerulosclerosis (FSGS) is a disease in which scar tissue develops on the parts of the kidneys that filter waste from the blood (glomeruli). FSGS is a serious condition that can lead to kidney failure, for which the only treatment options are dialysis or kidney transplant." (mayoclinic.org)