Help Find a Kidney Donor for Luke
Luke is 17 months old and has been on dialysis since July 2017. He is in need of a kidney!
If you are Blood Type O and would like to be tested to see if you are a match for Luke, contact Michelle Mitchell, RN, his transplant coordinator at Vanderbilt Children's Hospital in Nashville, TN. Call (615) 322-7416 and leave your information.
You must be under the age of 50, have a BMI less than 35 and have no history of kidney stones.
Luke's mom shared his story with us...
Lucas Leland jones was born on 7-22-16. He weighed 4 lbs 15 oz and was 6 weeks premature. Everything went pretty smooth until the 20 wk ultrasound when we were supposed to be seeing the anatomy and getting really excited about having a new little BOY! Instead the ultrasound tech started writing things and sending notes out to the doctor. I noticed she was taking lots of pictures of the kidneys.
The doctor came in and said I would need to be seen by high risk as there are cysts on the kidneys and clubbed feet and an absent nasal bone...all markers for Down syndrome. I was devastated to say the least. The next day they confirmed Lucas has bad kidneys, one would not function and the other was so so.
All testing came back normal and at times the kidney that was functioning was looking better. We made it to 30 weeks and they started seeing the kidney not looking so good and they were doubting he would have any kidney function. All I could do was pray and give it to God. I knew he wouldn't give us more than we could handle.
At 34 weeks I lost all my fluid and his heart rate was showing signs of distress. I was induced but his heart rate was getting worse so we had to do an emergency c-section. When they pulled Luke out of me, I heard nothing. I kept asking if he was alive or crying. He was alive but not crying. They let me look at him for a second and whisked him off to the NICU.
While I was in recovery I got to see a video of baby Luke CRYING! He sounded like a little lamb, he was so adorable! We spent 18 days in the NICU watching his numbers and also finding out he had an intraventricular hemmorage of the brain which could cause hydrocephalus and cerebral palsy. We were terrified! So we just prayed and waited for him to be big and stable enough to go home.
We came home and life has forever changed for us. Luke is an adorable little boy with a big personality. We have a ton of doctors appointments and we have started dialysis at 11 months. He's truly a miracle. We have have to have surgery for his clubbed feet and his brain bleed is stable and he's doing well.
Life has definitely changed but the love we have for this boy makes every second worth it. I'm so glad we chose life because the obstacles we were facing with him were so scary because of the unknowns, but once he was here there was no question we made the right choice.
You can follow Luke's journey at www.facebook.com/LucasLeland